The third annual walk for neurofibromatosis is taking place in West Bloomfield on June 22, 9:30 a.m. to 12 p.m. Organizers hope to raise neurofibromatosis awareness and funds for research. The fundraising walk is at the West Bloomfield High School track and hopes to raise awareness of neurofibromatosis and to raise money for research. It will be hosted by the Saikalis family of West Bloomfield.
A genetic disorder of the nervous system, neurofibromatosis affects one in 2,500 and can cause cancer, hearing loss, blindness, learning disabilities, epilepsy, bone deformities, and chronic pain. It has been said that “NF is more common than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington’s disease, and Tay-Sachs disease combined.” (http://bryanking.net/neurofibromatosis-nf/). Anyone can be born with neurofibromatosis.
A silent auction with a variety of exciting items will be on display for bidding before and during the walk, and items will be distributed by the end of the event. Payment in full shall be accepted by cash or check. Cash is preferred for processing purposes. There will also be a handful of vendors on hand that will donate the proceeds to neurofibromatosis research.
The first two walks combined raised more than $20,000. The goal for this year’s walk is to double or triple that figure.